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Craniosynostosis is a condition in which the bones of a baby's skull fuse together prematurely, before the baby's brain has fully developed. This can cause the skull to grow in an abnormal shape, which can lead to developmental delays, learning disabilities, and other neurological problems.
Craniosynostosis is a rare condition that affects about 1 in every 2,000 babies. The cause of the condition is not fully understood, but it is believed to be related to genetic factors or abnormal development of the fetus.
Symptoms of craniosynostosis may include an abnormally shaped head, asymmetrical facial features, or an unusual pattern of skull sutures. In severe cases, the condition may also lead to increased pressure on the brain, which can cause headaches, seizures, or other neurological problems.
Treatment for craniosynostosis typically involves surgery to reshape the skull and relieve pressure on the brain. The surgery is typically performed during the baby's first year of life and is often successful in correcting the abnormal shape of the skull and preventing further neurological problems.
Long-term outcomes for babies with craniosynostosis can vary, depending on the severity of the condition and the effectiveness of the surgical treatment. Some babies may experience developmental delays or learning disabilities, while others may have normal cognitive development. With early diagnosis and appropriate treatment, however, most babies with craniosynostosis are able to live healthy and fulfilling lives.
Often the cause of craniosynostosis is not known, but sometimes it's related to genetic disorders.
Mild cases of craniosynostosis may not need treatment. Your doctor may recommend a specially molded helmet to help reshape your baby's head if the cranial sutures are open and the head shape is abnormal. In this situation, the molded helmet can assist your baby's brain growth and correct the shape of the skull.
However, for most babies, surgery is the primary treatment. The type and timing of surgery depends on the type of craniosynostosis and whether there's an underlying genetic syndrome. Sometimes more than one surgery is required.
The purpose of surgery is to correct the abnormal head shape, reduce or prevent pressure on the brain, create room for the brain to grow normally, and improve your baby's appearance. This involves a process of planning and surgery.
Imaging studies can help surgeons develop a surgical procedure plan. Virtual surgical planning for treatment of craniosynostosis uses high-definition 3D CT scans and MRIs of your baby's skull to construct a computer-simulated, individualized surgical plan. Based on that virtual surgical plan, customized templates are constructed to guide the procedure.
A team that includes a specialist in surgery of the head and face (craniofacial surgeon) and a specialist in brain surgery (neurosurgeon) generally performs the procedure. Surgery can be done by endoscopic or open surgery. Both types of procedures generally produce very good cosmetic results with low risk of complications.
After endoscopic surgery, office visits at certain intervals are required to fit a series of helmets to help shape your baby's skull. The surgeon will determine the length of helmet therapy based on how quickly the shape responds to treatment. If open surgery is done, no helmet is needed afterward.